It's May 8th, 2014 and we have been super busy with her sister's first birthday and other things. We have had no progress since our last appointment at the Children's Hospital in Philly. So we have been just trying to accept what she has. And she as of know shows no emotion about it but I'm sure once she gets older and see's other people with long hair her aspect of it might change.

She starts kindergarten this fall and I've been panicking and trying to stay positive but in this world it's hard because you just think of the worst. We talked to her about a wig and she said no way but the other day she brought it up I'm not sure if she really wants it or has someone been bugging her about it. There's a couple people in her life that I feel just won't accept what she has and pressures her into wigs ect. but I may be wrong.